March 29, 2007

Day 45
I have the worst time keeping track of what day we are on. I usually read the comments after the last posting, and check out the date while I'm there, otherwise I'd have no idea where we are. A wise person told me at the beginning of this journey that you don't know what you can do until you have to do it. There's not much more to say other than that. The kids are getting over their colds, and I'm drinking lots of tea and taking my vitamins, so we'll see what happens. I feel OK today, had a good sleep last night, and that really makes a difference.
Glenn had his trache tube capped a couple of times today. He will suffer from a feeling of breathlessness for a while, so he has to be broken into breathing without the tube. The RT was still concerned about how much stuff he was coughing up, but said that they would continue with the capping. It is scarey for him, I could tell. They put an oxygen mask under his nose, and he still got breathless. The RT told him that is usually what happens, and as he gets used to breathing through his nose and mouth again, he will be more comfortable, but it will take a bit of time. It is just one challenge after another, and I do wish I could help him more.
He was telling me (with the letter board) that Colin had been to see him before work today. He also said that he had a good therapy session. We visited with my brother, and Glenn was trying to tell us something about farming down east. It is a bit slow, but he is getting better at getting his words across all the time. It is a relief to be able to understand him. He isn't as clear in the evening when he is getting tired, but stimulation is the key.
I am happy that we missed the snow fall, I actually had coffee with the Sewing Ladies today. Jackie and I drove separately because she was babysitting tonight, and wasn't sure how late she was going to be. That's the first time this week, so we are getting better at co-ordinating that as well. The price of gas is not going down ( surprise, surprise) so we are trying to save as much as we can. It is also nicer to have company when driving back and forth.
That was the big news for today, we'll see how quickly we can get rid of the tube now, so keep praying for Glenn's stamina and will power. We've a long way to go, but have already come a long way. Tomorrow is Friday, so we will have a couple of days off again. I hope the weather will allow us to go outside, that is really a nice break for Glenn and for me.
'Til next time,
Louise